Wednesday, October 13, 2010

IN CONTROL

I now as a kidney is getting use to the life my food intake and fluid control it takes all of my will power to curb my desires but now i seem to be winning the battle. I have decided to cook more often and with me not putting in ant salt in my food i am able to control my thirst. The food i cook is not delicious and very bland i try to spice up the dishes with the addition of more chillies but still the food i cook can only be eaten by me.

Inbetween dialysis i am only suppose to gain a maximum of 2,5kg the last dialysis i only gain 1.9kg but this is a long battle and i must keep at it and this process last forever until i expire. I am still addicted to drinking water but since i cut down on my salt or sodium intake the thirst is not so unbearable.

I am now in hospital waiting for my fistula or graft operation. A surgeon creates an AV fistula b y connecting an artery directly to a vein. I am in singapore genral hospital or SGH.

SGH is singapore premier hospital and is almost running at full capacity. SGH is very proffesionally run with many set procudures and rules and bending of the rules is not tolerated. Even before you allowed to be warded even if a doctor has sign off you will have to prove to the hospital that you are able to afford treatment. WISH ME LUCK MY OPERSATION IS THE MORNING OF 14 OF OCT 2010

Friday, October 8, 2010

UN-BLESS LIFE

I have been afflictred by kidney failure and i have been on dialysis for about 2 months this is retribution or karma for a life led by apathy and carelessness towards my health.

Many years i have been living alone and caring for nothing except for my daily livelihood and expenses. i have always been a loner and it was never a problem for me i love to do things in isolation reading have always been a passion, watching movies on dvd have always occupy my time leisurly.

During my younger years my focus have always been on money and career i am cheerful guy and i would easily get work up and i am also sometimes too focus on the task on hand that i brush off and offend people. I have one major failing is that i am lousy at "tripod management"- is the currying of favors of my immediate superiors at work, when i was working i would resist most of the suggestions made by my then bosses but i would put in long hours and perform tasks not wanted by my colleagues. i was tolerated at work because of this but socially i was a cast off and would definitely get voted off if this was an episode of "survivor"

My attitude towards my health always been of avoidance i did not care about my health and would always go on eating binges but stuffing myself on the buffet table and i would especially devour the desserts. i do not smoke nor drink but i am a food and plain water addict and now i am being punish for living this kind of life living an un-bless life and in singapore getting treatment is all about money and i am very worried on whether i can afford treatment in the near future.

Monday, October 4, 2010

LIFE SAVER

Kidney patients have to undergo dialysis in order to survive. A very inconvient treatment but it let us live an acceptable standard of living. The doctors have to establish our DRY weight which is your weight without the excess fluid that builds up between dialysis treatments, and today i gain about 4kg since my last dialysis meaning i have poor control of my diet and fluid intake, the acceptable weight gain ranges from 1kg to 2kg. I MUST WIN THIS BATTLE !!!because it will affect my immediate well-being and my long-term health.

There are mainly 2 main types of dialysis Hemodialysis and Peritoneal dialysis. I am at present undergoing hemodialysis. Dialysis is The process of cleansing the blood by passing it through a special machine. Dialysis is necessary when the kidneys are not able to filter the blood. Hemodialysis is the cleaning and filtering of waste products from the blood at present my blood is pump through a dialyser clean and then pumped back into my body.

My dialysis is done at an outpatient centre 3 times a week and each session last about 4 hrs. Each session starts with the weigh in like in a prize fight this is to determine the weight gain from the last dialysis the nurse will adjust the machine accordingly. Kidney patients have little or no urine flow and if the excess fluid is not drain out it will lead to Increase in blood pressure due to extra fluid in the blood stream, swelling, called edema, in the feet, ankles, wrists, face and around the eyes, Shortness of breath due to fluid in the lungs, heart problems, which can include a fast pulse, weakened heart muscles and an enlarged heart.

During dialysis my blood pressure is being taken period periodically to ensure my pressure is not too low which may lead to nausea, headaches or fainting spells. During the 4 hrs dialysis i try to be productive reading a book, thinking what to blod about.

When dialysis is done right we kidney patients from the outside will look normal and even have a healthy glow, some friends and colleaques even wonder if we are really suffering from an incurable disease. I have started dialysis for about 2 months and i am still adjusting to it my fluid and diet control is poor and i get very tired after dialysis. I must get back to a normal life being a productive person of society

Friday, October 1, 2010

POSITIVE OUTLOOK

I was diagnose with kidney failure and i was told to have a positive outlook and to remain cheerful because this disease is not a death sentence. I am very sorry that this is something at present i cannot achieve. I have no ambitions my present plan is to be pain free and to keep to my fluid and diet restrictions not to be a burden.

I have accepted my fate but most things that i use to enjoy is off limits now. My plan now is to prepare financially for my treatments and to return to work asap. I will do my best to live as comfortable as possible and my outlook in life is one of acceptance and to prepare my body for the long road ahead. In s'pore financial help although very difficult is easier to find then emotional help.

S'pore has a national medical savings account system for Singaporeans call medisave and we also have medishield which is a low cost catastrophic national illness insurance scheme. Luckily i was quite productive before my illness and i have a healthy balance sheet in my medisave acct. S'pore govt has a very practical way of doing things and there is a cap on the claims i can make from both schemes for dialysis. Medisave is $450 and medishield is $1000 for a total of $1450 per month for dialysis. I have to still use some cash money to pay for dialysis about $900 monthly.

Emotional support is quite hard to find in s'pore there are counsellors based in the hospital and one was assigned to me when my disease was confirmed she spent a few minutes assuring me but soon our session was spent mostly on the financial aspect of the disease.